• Suomen Parkinson-liitto
• Svensk Dystoniförening
• Danish Dystonia Society
• Norsk Dystoniförening
• European Dystonia Federation
• The Dystonia Society (Iso-Britannia)
• ADDER - Action for Dystonia, Diagnosis, Education & Research (Iso-Britannia)
• Deutsche Dystonie Gesellschaft
• Ligue Française contre la Dystonie
• Association des Malades atteints de Dystonie (AMADYS)
• Dystonia Medical Research Foundation
• NSTA, National Spasmodic Torticollis Association,Inc.
• NSDA, National Spasmodic Dysphonia Association
• Benign Essential Blepharospasm Research Foundation, inc.
• WE MOVE (Worldwide Education and Awareness for Movement Disorders)
• The Mount Sinai School of Medicine WWW server

Dystoniaan liittyviä News Grouppejä:

• Newsgroup: alt.support.dystonia